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Progress in Community Health Partnerships: Research, Education, and Action

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Social work -- Research -- Participant observation, Community-based participatory research -- Case studies, Young adults -- Psychology, Psychoses -- Treatment


Young adults (YA) who have experienced early psychosis (EP) have valuable information about their recovery process yet are often left out of research. We used a community-based participatory research (CBPR) approach in partnership with the Early Assessment and Support Alliance (EASA) EP program and Portland State University to develop a peer-driven, web-based, recovery resource.We used our CBPR process to collaboratively develop the resource and conducted an iterative usability study to test and refine it. The resource was well-received and accessible. YA partners emphasize the importance of being prepared to learn about research and one’s self, being open to new experiences, and how being co-researchers can help with processing EP experiences for the benefit of one’s self and peers. Peer involvement in intervention development may increase usability. It benefits YA and adult co-researchers. We strongly recommend including YA who have experienced EP as co-researchers.


This is the authors manuscript - peer reviewed and accepted for publication; The publisher's final edited version of this article is available at:

Prog Community Health Partnersh. 2020; 14(4): 471–480.

doi: 10.1353/cpr.2020.0052

Final version - Copyright © 2020 Johns Hopkins University Press.

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