This work was supported by the Pathways to Positive Futures RTC via a grant funded by the National Institute of Disability, Independent Living, and Rehabilitation Research (NIDILRR grant 90RT5030). NIDILRR is a Center within the Administration for Community Living (ACL). The content does not necessarily represent the policy of NIDILRR, or endorsement by the Federal Government.
Progress in Community Health Partnerships: Research, Education, and Action
Social work -- Research -- Participant observation, Community-based participatory research -- Case studies, Young adults -- Psychology, Psychoses -- Treatment
Young adults (YA) who have experienced early psychosis (EP) have valuable information about their recovery process yet are often left out of research. We used a community-based participatory research (CBPR) approach in partnership with the Early Assessment and Support Alliance (EASA) EP program and Portland State University to develop a peer-driven, web-based, recovery resource.We used our CBPR process to collaboratively develop the resource and conducted an iterative usability study to test and refine it. The resource was well-received and accessible. YA partners emphasize the importance of being prepared to learn about research and one’s self, being open to new experiences, and how being co-researchers can help with processing EP experiences for the benefit of one’s self and peers. Peer involvement in intervention development may increase usability. It benefits YA and adult co-researchers. We strongly recommend including YA who have experienced EP as co-researchers.
This is the authors manuscript - peer reviewed and accepted for publication; The publisher's final edited version of this article is available at:
Final version - Copyright © 2020 Johns Hopkins University Press.
Published as: Raymaker, D.M., Sale T., Rija M., Buekea, N., Caruso, N., Melton, R., Cohrs, N., Gould, V., Wall, C., Scharer, M. (2020) EASA Connections: Community-based participatory research to develop a peer-based early psychosis web resource with young adults. Progress in Community Health Partnerships. 14(4):471-480.