Sponsor
This work was supported by the Pathways to Positive Futures RTC via a grant funded by the National Institute of Disability, Independent Living, and Rehabilitation Research (NIDILRR grant 90RT5030). NIDILRR is a Center within the Administration for Community Living (ACL). The content does not necessarily represent the policy of NIDILRR, or endorsement by the Federal Government.
Published In
Progress in Community Health Partnerships: Research, Education, and Action
Document Type
Post-Print
Publication Date
2020
Subjects
Social work -- Research -- Participant observation, Community-based participatory research -- Case studies, Young adults -- Psychology, Psychoses -- Treatment
Abstract
Young adults (YA) who have experienced early psychosis (EP) have valuable information about their recovery process yet are often left out of research. We used a community-based participatory research (CBPR) approach in partnership with the Early Assessment and Support Alliance (EASA) EP program and Portland State University to develop a peer-driven, web-based, recovery resource.We used our CBPR process to collaboratively develop the resource and conducted an iterative usability study to test and refine it. The resource was well-received and accessible. YA partners emphasize the importance of being prepared to learn about research and one’s self, being open to new experiences, and how being co-researchers can help with processing EP experiences for the benefit of one’s self and peers. Peer involvement in intervention development may increase usability. It benefits YA and adult co-researchers. We strongly recommend including YA who have experienced EP as co-researchers.
Rights
This is the authors manuscript - peer reviewed and accepted for publication; The publisher's final edited version of this article is available at:
Prog Community Health Partnersh. 2020; 14(4): 471–480.
Final version - Copyright © 2020 Johns Hopkins University Press.
Persistent Identifier
https://archives.pdx.edu/ds/psu/35637
Citation Details
Published as: Raymaker, D.M., Sale T., Rija M., Buekea, N., Caruso, N., Melton, R., Cohrs, N., Gould, V., Wall, C., Scharer, M. (2020) EASA Connections: Community-based participatory research to develop a peer-based early psychosis web resource with young adults. Progress in Community Health Partnerships. 14(4):471-480.