Title of Presentation
Psychosocial impact of chronic disease: Focus on positive illness impact using the PROMIS measure among rheumatoid arthritis patients
Presenter Biography
Danielle ZuZero is from Kalispell, Montana and is studying Health Sciences at PSU with a minor in Dance. She aspires to become an Osteopathic Doctor while pursuing research within complementary alternative medicine.
Institution
PSU
Program/Major
Health Sciences
Degree
BS
Presentation Type
Poster
Room Location
Smith Memorial Student Union, Room 296/8
Start Date
April 2019
End Date
April 2019
Abstract
Keywords: rheumatoid arthritis, PROMIS, positive illness impact, psychosocial, chronic disease
Background: Positive illness impact (PII) is defined as the ability to see the positive side of a difficult situation, an aspect of chronic disease that remains largely unexamined among persons with rheumatoid arthritis (RA). Our objective was to explore the use of the Patient-Reported Outcomes Measurement Information Survey (PROMIS) PII measure among RA patients, which captures patient-reported functional quality of life (QoL) and emotional wellbeing before and after illness diagnosis.
Methods: RA patients seen ≥once in the prior 12 months at the OHSU or VA rheumatology clinic were enrolled in a cross-sectional survey study to examine goal concordance. Patients completed a survey on demographics, health literacy, overall health, and the PROMIS PII short form survey containing 8 questions such as: “I can appreciate each day fully” with further specification “how true was this before your illness” and “how true is this now, since your illness?” Response options range from “not at all” (2) to “very much” (5). Answers from “since your illness” were used to calculate each PROMIS score.
Results:160 participants completed the PROMIS PII with an average score of 32.24, which falls below the general population average. Participants were mostly female (58%).
Future Implications: The next steps will be to explore the relationship between a patients’ PROMIS score, their depressive symptoms, and self-efficacy for managing chronic disease. By acknowledging the importance of psychosocial impacts of RA, physicians can incorporate this knowledge into future treatment plans to improve QoL.
Psychosocial impact of chronic disease: Focus on positive illness impact using the PROMIS measure among rheumatoid arthritis patients
Smith Memorial Student Union, Room 296/8
Keywords: rheumatoid arthritis, PROMIS, positive illness impact, psychosocial, chronic disease
Background: Positive illness impact (PII) is defined as the ability to see the positive side of a difficult situation, an aspect of chronic disease that remains largely unexamined among persons with rheumatoid arthritis (RA). Our objective was to explore the use of the Patient-Reported Outcomes Measurement Information Survey (PROMIS) PII measure among RA patients, which captures patient-reported functional quality of life (QoL) and emotional wellbeing before and after illness diagnosis.
Methods: RA patients seen ≥once in the prior 12 months at the OHSU or VA rheumatology clinic were enrolled in a cross-sectional survey study to examine goal concordance. Patients completed a survey on demographics, health literacy, overall health, and the PROMIS PII short form survey containing 8 questions such as: “I can appreciate each day fully” with further specification “how true was this before your illness” and “how true is this now, since your illness?” Response options range from “not at all” (2) to “very much” (5). Answers from “since your illness” were used to calculate each PROMIS score.
Results:160 participants completed the PROMIS PII with an average score of 32.24, which falls below the general population average. Participants were mostly female (58%).
Future Implications: The next steps will be to explore the relationship between a patients’ PROMIS score, their depressive symptoms, and self-efficacy for managing chronic disease. By acknowledging the importance of psychosocial impacts of RA, physicians can incorporate this knowledge into future treatment plans to improve QoL.