Work reported in this publication was supported by the National Institutes of Health Common Fund and Office of Scientific Workforce Diversity under three linked awards RL5GM118963, TL4GM118965, and UL1GM118964, administered by the National Institute of General Medical Sciences. The REAL-START project was funded by Autism Speaks Early Access to Care Grant 8932. Dr. Zuckerman’s effort was supported by 1K23MH095828 from the National Institute of Mental Health. Statistical support was provided by the Oregon Clinical and Translational Research Institute (National Center for Advancing Translational Sciences of the National Institutes of Health UL1TR0002369).
Date of Award
Bachelor of Science (B.S.) in Public Health Studies: Pre-clinical Health Science and University Honors
Parents of developmentally disabled children, Early childhood special education, Learning disabled children -- Services for, Developmental disabilities
Objective: To test the association of parents’ concerns with Early Intervention (EI) developmental services outcomes including evaluation, eligibility, and enrollment in services.
Method: We collected survey data on parents’ concerns and EI service use data from a sample of 428 children referred to EI in 2016-2018 from six Oregon primary care clinics serving lower income families as part of a developmental and autism spectrum disorder screening intervention. We assessed EI service use trajectories and associations of parent concern presence, age of child at time of parents’ concerns, number of concerns, and type of provider concern, with EI evaluation, EI eligibility, and enrollment in EI services, using bivariate testing and multivariable logistic regression.
Results: Only 22.9% of children referred to EI were enrolled in services six months later. Children whose parents had developmental and/or behavioral concerns were more likely to receive an EI evaluation and were also more likely to be eligible for services, compared to children whose parents had no concerns. There was no association between age, number of concerns, or type of concern with EI evaluation, eligibility, or services enrollment.
Conclusion: Though only a minority of children referred to EI enroll in services, presence of parent concern is strongly associated with EI services evaluation and eligibility outcomes. Study results suggest that providers should assess the presence of parent concern when deciding on EI referrals, and provide more support to parents who are not concerned at all.
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Solgi, Mohadeseh, "Parent Concerns are Associated with Early Intervention Outcomes" (2021). University Honors Theses. Paper 1104.
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