Early Assessment and Support Alliance Connections: Community-Based Participatory Research to Develop a Peer-Based Early Psychosis Web Resource with Young Adults
This work was supported by the Pathways to Positive Futures RTC via a grant funded by the National Institute of Disability, Independent Living, and Rehabilitation Research (NIDILRR grant 90RT5030). NIDILRR is a Center within the Administration for Community Living (ACL). The content does not necessarily represent the policy of NIDILRR, or endorsement by the Federal Government.
Progress in Community Health Partnerships-Research Education and Action
Background: Young adults (YA) who have experienced early psychosis (EP) have valuable information about their recovery process yet are often left out of research.
Objectives: We used a community-based participatory research (CBPR) approach in partnership with the Early Assessment and Support Alliance (EASA) EP program and Portland State University to develop a peer-driven, webbased, recovery resource.
Methods: We used our CBPR process to collaboratively develop the resource and conducted an iterative usability study to test and refine it.
Lessons Learned: The resource was well-received and accessible. YA partners emphasize the importance of being prepared to learn about research and one's self, being open to new experiences, and how being co-researchers can help with processing EP experiences for the benefit of one's self and peers.
Conclusions: Peer involvement in intervention development may increase usability. It benefits YA and adult coresearchers. We strongly recommend including YA who have experienced EP as co-researchers.
Copyright © 2020 Johns Hopkins University Press
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Progress in Community Health Partnerships: Research, Education, and Action, Volume 14, Issue 4, Winter 2020, pp. 471-480 https://doi.org/10.1353/cpr.2020.0052