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Presentation Type

Oral Presentation

Subjects

Patient education, Cleft palate -- Patients, Preoperative education -- Methodology, Language and languages -- Variation

Department

Speech and Hearing Sciences

Advisor

Brandon Eddy

Student Level

Masters

Abstract

Parents and caregivers are important members of their child’s cleft lip and palate care team. Research has shown that parent and caregiver education results in better surgical outcomes for children (Landier et al., 2018, Chen et al., 2020). The American Cleft Palate-Craniofacial Association (ACPA) mandates that the gold standard in cleft care requires patient and caregiver education. In an effort to promote patient and caregiver communication, the Cleft Care Team at Shriners Hospitals for Children-Portland (SHC) partnered with Portland State University’s Speech & Hearing Sciences department to research and develop accessible patient education handouts about secondary cleft palate surgical procedures. Taking into consideration the diverse populations, socioeconomic statuses, and education levels of families receiving care at SHC, handouts were developed through an iterative process with professional stakeholders to be accessible for culturally and linguistically diverse communities and individuals with limited literacy levels. The American Medical Association recommends that any patient education materials be written at a sixth grade reading level (Safeer & Keenan, 2005). A pre- and post-intervention survey was developed to measure parent and caregiver’s satisfaction and knowledge in a two condition study design where one group will receive verbal education and a procedure-specific handout and the other group will receive verbal education only. Open-ended questions will be used to obtain feedback from patients, families, and caregivers to develop further iterations of the handouts. Results of the survey will be used to improve patient education performance for the SHC Cleft Care Team.

Persistent Identifier

https://archives.pdx.edu/ds/psu/35435

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An iterative design for patient education handouts: creating accessible written pre-operative information for diverse cleft palate patients and their families

Parents and caregivers are important members of their child’s cleft lip and palate care team. Research has shown that parent and caregiver education results in better surgical outcomes for children (Landier et al., 2018, Chen et al., 2020). The American Cleft Palate-Craniofacial Association (ACPA) mandates that the gold standard in cleft care requires patient and caregiver education. In an effort to promote patient and caregiver communication, the Cleft Care Team at Shriners Hospitals for Children-Portland (SHC) partnered with Portland State University’s Speech & Hearing Sciences department to research and develop accessible patient education handouts about secondary cleft palate surgical procedures. Taking into consideration the diverse populations, socioeconomic statuses, and education levels of families receiving care at SHC, handouts were developed through an iterative process with professional stakeholders to be accessible for culturally and linguistically diverse communities and individuals with limited literacy levels. The American Medical Association recommends that any patient education materials be written at a sixth grade reading level (Safeer & Keenan, 2005). A pre- and post-intervention survey was developed to measure parent and caregiver’s satisfaction and knowledge in a two condition study design where one group will receive verbal education and a procedure-specific handout and the other group will receive verbal education only. Open-ended questions will be used to obtain feedback from patients, families, and caregivers to develop further iterations of the handouts. Results of the survey will be used to improve patient education performance for the SHC Cleft Care Team.