Experiences and Preferences for Learning About Neonatal Research: Insights from Parent Interviews.

Authors

Elliott Mark Weiss, Seattle Children's Research Institute
Kathryn M. Porter, Seattle Children's Research Institute
Ellie Oslin, Seattle Children's Research Institute
Mihai Puia-Dumitrescu, University of Washington School of Medicine
Pamela K. Donohue, Johns Hopkins School of Medicine
Stephanie L. Merhar, Cincinnati Children's Hospital Medical Center
Emily Stephens, The University of Texas Health Science Center at Houston
Amanda Mercer, Portland State UniversityFollow
Benjamin S. Wilfond, Seattle Children's Research Institute

Published In

Journal of Perinatology : Official Journal of the California Perinatal Association

Document Type

Citation

Publication Date

11-25-2023

Abstract

Parents struggle with being asked to participate in neonatal research. Past work has largely failed to include views of minoritized parents, low-socioeconomic status parents, and those who declined research. We aimed to describe parents' preferences related to learning about eligibility for neonatal research.

Rights

© 2023 Springer Nature Limited

Locate the Document

https://doi.org/10.1038/s41372-023-01790-6

DOI

10.1038/s41372-023-01790-6

Persistent Identifier

https://archives.pdx.edu/ds/psu/41031

Citation Details

Weiss, E. M., Porter, K. M., Oslin, E., Puia-Dumitrescu, M., Donohue, P. K., Merhar, S. L., Stephens, E., Mercer, A., & Wilfond, B. S. (2023). Experiences and preferences for learning about neonatal research: insights from parent interviews. Journal of Perinatology.