Published In

Journal of Public Health Management & Practice

Document Type

Report

Publication Date

6-11-2026

Abstract

Context: Federal law establishes American Indian and Alaska Native Tribes and Tribal Epidemiology Centers (TECs) as public health authorities with rights to state data to conduct public health activities. Tribal authorities, however, struggle to access public health data.

Objectives: To examine TECs’ access and barriers to public health surveillance data, and using syphilis as a case study, to assess data availability and timeliness nationwide.

Design: In-depth qualitative interviews and a desk audit of syphilis data by states.

Setting: All 12 TECs who collectively provide epidemiologic and public health support to 574 Tribes and 41 Urban Indian Centers nationwide.

Participants: Sixteen interviewees from 7 TECs participated; their positions ranged from staff epidemiologists to center directors.

Main Outcome Measures: Interviews explored access to sexually transmitted infections data, barriers, and improvement recommendations. Desk audit applied Google searches to locate state-published syphilis data. We extracted information on reporting detail, including time from reporting period end to publication, demographic and geographic variables, and syphilis-specific indicators (eg, type and risk factors).

Results: Participants reported considerable difficulties accessing timely, useful health data from states, instead relying on publicly facing data. The primary barrier was state health departments’ lack of recognition of TECs’ and Tribes’ public health authority. Data gatekeeping affected public health functions from data access to Tribal health outcomes. Desk audit revealed 12 of 50 states reporting syphilis data within the past year; only 4 are among the top 10 states by American Indian and Alaska Native population share.

Conclusions: Publicly facing data are generally not timely or detailed enough for public health monitoring response, underscoring need for TEC access to timely, state-held epidemiological data. TEC and Tribal public health authority must be reinforced through formal recognition by states, and enforced by federal agencies who can hold states accountable through funding agreements.

Rights

Copyright © 2026 Wolters Kluwer Health, Inc. All rights reserved.

This is an open access article distributed under the terms of the Creative

Commons Attribution-Non Commercial-No Derivatives License 4.0 (CCBY-NC- ND), where it is permissible to download and share the work provided it is properly cited. The work cannot be changed in any way or used commercially without permission from the journal.

Description

Key Words: American Indian or Alaska Native, health equity, public health surveillance, sexually transmitted diseases, Tribal sovereignty

DOI

10.1097/PHH.0000000000002386

Persistent Identifier

https://archives.pdx.edu/ds/psu/44955

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