Presentation Type
Oral Presentation
Start Date
5-4-2022 9:00 AM
End Date
5-4-2022 11:00 AM
Subjects
Ehlers Danlos Syndrome; dysphagia; dysautonomia; swallowing
Advisor
Dr. Deanna Britton
Student Level
Undergraduate
Abstract
Ehlers Danlos Syndromes (EDS) are collagen-based hereditary connective tissue disorders characterized by decreased tissue integrity. Historically, the musculoskeletal and dermatological manifestations have been emphasized. However, EDS is associated with symptoms and conditions affecting nearly all body systems, including swallowing (dysphagia). A Cohort Discovery analysis at Oregon Health & Science University (OHSU) revealed that 14.9% ± 0.3% of patients with an ICD-10 diagnosis of EDS also have an ICD-10 diagnosis of dysphagia in their medical record. Despite only one article in the current literature, the prevalence of dysphagia in EDS is not insignificant and warrants further investigation. Our long-term hypothesis is that hEDS’s impact on swallowing is multifaceted and related to both structural and physiological impairments. The purpose of this study is to identify patterns and actionable factors which contribute to dysphagia in people with hEDS with or without comorbid dysautonomia. We will use a phenomenological qualitative approach, including questionnaires and a semi-structured interview. The interviews will be audio/visual recorded, orthographically transcribed, and then analyzed using Atlas.ti 84 Web. Based on analysis of the experiences, signs, symptoms, and factors impacting swallowing in people with EDS, themes and actionable factors will be derived and discussed.
Rights
© Copyright the author(s)
IN COPYRIGHT:
http://rightsstatements.org/vocab/InC/1.0/
This Item is protected by copyright and/or related rights. You are free to use this Item in any way that is permitted by the copyright and related rights legislation that applies to your use. For other uses you need to obtain permission from the rights-holder(s).
DISCLAIMER:
The purpose of this statement is to help the public understand how this Item may be used. When there is a (non-standard) License or contract that governs re-use of the associated Item, this statement only summarizes the effects of some of its terms. It is not a License, and should not be used to license your Work. To license your own Work, use a License offered at https://creativecommons.org/
Persistent Identifier
https://archives.pdx.edu/ds/psu/37491
Included in
Patterns of and Experiences with Dysphagia in People with Hypermobile Ehlers Danlos Syndrome (hEDS) With or Without Dysautonomia
Ehlers Danlos Syndromes (EDS) are collagen-based hereditary connective tissue disorders characterized by decreased tissue integrity. Historically, the musculoskeletal and dermatological manifestations have been emphasized. However, EDS is associated with symptoms and conditions affecting nearly all body systems, including swallowing (dysphagia). A Cohort Discovery analysis at Oregon Health & Science University (OHSU) revealed that 14.9% ± 0.3% of patients with an ICD-10 diagnosis of EDS also have an ICD-10 diagnosis of dysphagia in their medical record. Despite only one article in the current literature, the prevalence of dysphagia in EDS is not insignificant and warrants further investigation. Our long-term hypothesis is that hEDS’s impact on swallowing is multifaceted and related to both structural and physiological impairments. The purpose of this study is to identify patterns and actionable factors which contribute to dysphagia in people with hEDS with or without comorbid dysautonomia. We will use a phenomenological qualitative approach, including questionnaires and a semi-structured interview. The interviews will be audio/visual recorded, orthographically transcribed, and then analyzed using Atlas.ti 84 Web. Based on analysis of the experiences, signs, symptoms, and factors impacting swallowing in people with EDS, themes and actionable factors will be derived and discussed.